The Boy Whose Skin Fell Off

Jonny Kennedy idecided to work with filmmaker Patrick Collerton to document his last months, resulting in this uplifting, confounding and provocatively humorous story. Though not shying away from the grim reality, the film is a celebration of a life lived to the full. It features an interview with his mother Edna who has been his life-long carer and now faces the prospect of Johnny's death with disarming mixed feelings

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Duration: 49 min