They did it again! Jazz raised the price of 360 ml (2 bottles) by $250 and now the shipment I just received they raised the price $300.



I was paying $676 a month in March 2007 before Jazz agreed to pay $20M in fines and damages for illegally promoting Xyrem for off label uses.



It would seem they are abusing their government created monopoly to price gouge and pass along the fines to its customers.



By the way, GHB was used for narcolepsy back when it was still available over the counter. Neither Jazz or predecessor Orphan developed GHB or discovered its implications for narcolepsy. It was the FDA that approached Orphan, after GHB was made a schedule 1 drug but with the provision to be schedule III if brought to market by a pharmaceutical company. The FDA provided financial incentives to Orphan to encourage them to take the drug through the trials and approval process.



I suggest you write to the Justice Department who investigated Jazz for promoting Xyrem for off label uses illegally. I also suggest you write to your senetors and representatives asking them to end the monopoly given to Jazz and allow other manufacturers to sell a generic version. Jazz does hold some pattents on Xyrem but they are all related to adding preservatives to increase shelf life.



Sorry to get off on a rant but this really does wonders for my narcolepsy and I am at the point I can no longer afford it.



I am seriously tempted to hire a chemist or chemical engineer to find a reasonable synthesis process that I could make myself. It probably would not cost any more than what I pay Jazz and I think I would take my chances with a jury should I ever have to explain my illegal activity.