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A brave East Kilbride boy who was granted access to ‘miracle’ medical cannabis treatment four weeks ago is still waiting on his prescription.

Six-year-old Cole Thomson is one of only 10 children to receive the life-changing cannabidiol (CBD), Epidiolex which is currently going through the licensing process after medical cannabis was legalised in the UK last year.

It is hoped the potentially miraculous medication will stop up to 10 traumatic stroke-like seizures endured by the youngster daily and, ultimately, save his life.

Cole’s mum Lisa Quarrell was delighted to win her hard-fought campaign. However, one month on there has been no word from Glasgow Children's Hospital as to when the family will gain access to the CBD oil.

And with Cole’s health deteriorating each day, the Newlandsmuir mum-of-two continues to face an exhausting daily battle to fight for her son’s life.

Lisa, 37, told the East Kilbride News: “We are into the fourth week now since being offered Epidiolex for Cole and we’re still waiting, with no explanation or idea of when we will get it which is very frustrating because Cole’s seizures are as bad as ever.

“I got CBD oil from Spain and Cole’s condition got a little better. He was walking so much better and his seizures halved. However, it’s not strong enough to stop his seizures at night and I’m still so frightened going to bed every night.

“Cole’s becoming agitated and is now needing physio because of the weakness down his right side but this won’t get much better until we control his seizures, it’s a nightmare. I am absolutely exhausted, I just want to see him get better.”

Lisa is one of 35 parents of children with severe epilepsy who last week wrote an open letter to the British Paediatric Neurology Association (BPNA) accusing doctors of blocking access to medicinal cannabis which could help save their kids lives.

Home Secretary Sajid Javid announced in November that the law would be changed to make it easier to get access to medicinal cannabis but families insist this has not happened.

“They have called for an urgent review of government guidelines.

Concerns have been raised about the effect the psychoactive substance Tetrahydrocannabinol (THC) could have on the developing brain in children and young people.

In the letter to the BPNA they state: ‘Parents are desperate to help their children and should be able to rely to on their doctors to help us do this. Instead we are met by barriers and threats. This is not acceptable. You are ignoring the law change and refusing to allow doctors to help our children.’

Lisa launched the UK-wide Parents of Hope campaign group to push for the reform of the current laws around the use of cannabis for medication.

She explained: “Parents of Hope are a collective of parents who have children in urgent need of access to whole plant cannabis oils including THC.

“The law change last year allows neurologists to prescribe THC-based products however the BPNA guidelines are blocking clinicians from doing just that. We want to break down the guidelines in order that our children can receive the best medicine.

“Children in the UK, and abroad, who are prescribed cannabis oils including THC are evident of this reducing seizures.

“We understand that as from October 2019 The National Institute for Health and Care Excellence (NICE) will be in charge of writing the new guidelines. Parents of Hope will be sending them the open letter also.

“We are no longer fighting alone and have all come together to change these unrealistic guidelines to help save our children.”

A spokeswoman for NHS Greater Glasgow and Clyde said: “We are in the process of accessing the drug for Cole via the manufacturer and expect this will be within the next two weeks.

“The clinical team involved realises the urgency involved for Cole’s family and will commence his treatment with Epidiolex as soon as is possible.”