Amanda Williamson first noticed something was wrong with her daughter when she was seven years old. She would freeze and stay unresponsive for 30 seconds at a time.

Worried, she took her eldest daughter to see a specialist where she was diagnosed with epilepsy.

Over the years, Madison's condition worsened. At the worst point, she was having up to 50 cluster seizures per day, and convulsive seizures, where she would fall and thrash her body on the ground.

Madison Williamson. Credit:Luis Ascui

"There were times where she couldn’t remember parts of the day. She’d be embarrassed, realising she had fallen over in the shopping centre," her mother said.