Hi World,



My name is Joness, and I am an artist inviting you to join me on a mission to cure the incurable.



I live with a condition called fibrous dysplasia. Instead of having a fully healthy bone, part of it is fibrous tissue that fractures easily. I've struggled every day with its crippling effects since receiving this diagnosis 7 years ago.







This X-ray shows the bones in my right leg. You can see that all of the bone is healthy and normal until it gets down to the area around the ankle. The spirals are the collagen matrix that would be holding my bone marrow in place.



According to the doctor who diagnosed me, there are no options for me - no surgery, medication, nothing. There is no known cure for this condition - yet.



LIVING WITH FIBROUS DYSPLASIA



▪️ I broke my leg 3 times in 5 years; leaving me reliant on crutches, and the help of others. The 3rd break occurred while I was in a seated yoga position. That’s how delicate it can be.



▪️ Occasionally, a random "snap" will happen while I am walking in the middle of a public place. These micro-break episodes are extremely painful and embarrassing. However, they only leave me on crutches for a few weeks, instead of a few months.



▪️ Psychologically, it has been a lot for me to get used to, knowing that one wrong move could leave me painfully immobilized for weeks or months on end.



▪️On good days, I walk with a limp. On not so good days, I walk with a cane, which is still better than crutches. When the weather changes, it swells, and sometimes the pain keeps me up at night.



▪️ I have been able to manage the constant pain through lifestyle and diet adjustments that I discovered through independent research. Meditation and prayer keep me going with every step.



CURING THE INCURABLE



On August 30th, I met with experts at a stem cell clinic and set an appointment to receive treatment for my leg bone.



Now, for the first time since my journey began, I have real hope. Stem cells are providing amazing results for people who suffer from a variety of conditions. However, I have not been able to find a case study on the record for this therapy being applied to fibrous dysplasia.



My appointment is on 10/11/19 - less than a week after my birthday. The procedure is $10,000, and I am launching this crowdfunding campaign to help finance it.



There is at least a 50% chance of success, which is much much higher than no chance at all. Should therapy work, I hope it will become a known treatment option for others who are hopelessly suffering from this condition.



GIVING BACK TO YOU



Should you choose to embark on this quest with me, I wish to reward you! I'm offering some fun, exclusive prizes & original art in exchange for your generous contribution to this campaign.

A donation of one of these price markers will grant you access to:



$1 or more - A personal thank you from me.



$5 - A Single "Happy Stem Cell" Sticker

$10 - Sticker 3 Pack featuring Art Stickers



$50 - T-Shirt + 3 sticker pack



$100 - Original Water Color Painting

* Original art prizes are limited. I will only be accepting as many commissions as can be completed in a timely fashion.

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HOW TO CLAIM YOUR PRIZE



When you donate, you will see this box at the end of the donation form:





You must write the name of the prize you are seeking to claim along with your donation so that I know that you intend to receive a prize.



Here is a list of topics I will be willing to paint for your commission:



- Portraits



- Landscapes



- Botany Studies



- Mythological Creatures



- Geometry



- Abstract



Open to other ideas, but please keep it PG!



To see examples of previous works for inspiration, view my online portfolio.

Prizes will be fulfilled on a first-come, first-serve basis. Please allow up to several months for the creation of original art.



OTHER OPTIONS



▪️ If you are unable to contribute a monetary donation at this time, it is just as well to send me some prayers & good vibes my way, and share the campaign link (https://www.gofundme.com/manage/cure-the-incurable) with anyone you know who might be able to help.

I sincerely appreciate your support on this! Together, I believe we can cure the incurable.