My name is Emily Seraphin. I was born with a heart disease called HCM. Back in the 80's they did not know how to treat these types of diseases and I was sent home to die. 33 years later on September 4th 2015 I found out I was pregnant. My husband and I couldn't be more happy. we knew there was a 50/50 chance of her having my heart disease. I was referred to a high risk doctor and at 18 weeks we found out she had a large VSD (a hole in her heart). This did not concern me much because I was born with 7. The doctors still wanted a specialist to do a fetal echo exam. After a lot of insurance issues we had the test done. That same day at 28 weeks along we got the news she also had an interrupted aortic arch which would require surgery with in the first week of her life. We did so much research and reached out to other families who have gone through this. We thought we were well prepared. Lillian Rayne Seraphin came into this world two weeks early on 4/28/2016. Four days later on May 1st I got to hold my daughter for the first time before they took her for surgery. As prepared as we were I was not prepared for the emotion. Seeing them take her from me not knowing if she was coming back was the worst day of my life. 9 hours later we were reunited with Lillian with her chest still open and heart exposed. Who can say they actually got to see their own childs heart beating? That next week was so tough. I left the hospital crying every night. We went back to our hotel where our two cats were that helped my stress level. I delivered at Winnie Palmer Hospital in Orlando Fl. Lillian spent a whole month at Arnold Palmer Hospital. We live two hours away from the hospital so we had to stay at a hotel. Lillian finally got to go home on her one month birthday. My husband is in the U.S. Coast Guard protecting our country and is not always around. We have no family here because this is where we are stationed. We had to make the difficult decision that I would not go back to work. We could imagine anyone taking care of our fragile baby who at four days old had open heart surgery. With that said we are left with hospital bills that insurance isn't covering. The hotel bill while we were in Orlando for the month. Also the bills that I have always paid for while I was working. Anything helps and is so greatly appreciated!!!With all the prayers and support Lillian is home and greatly improving.