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Philip and Paula Joana pose at a friend's house in Succasunna with pictures of their 15-month-old daughter, Sabina, who died Dec. 2 following a 24-hour seizure. Sabina suffered from Dravet syndrome and her parents her applied to the state's medicinal marijuana program on her behalf.

(John Munson/The Star-Ledger)

When Gov. Chris Christie said he was done expanding New Jersey’s medical marijuana law "under any circumstances," in effect, this is what he meant:

A little girl from Hopatcong named Sabina Rose Joana, just 15 months old, would have to be taken off life support at a Livingston hospital because she couldn't get the edible marijuana she needed to control her life-threatening seizures.

Sabina suffered from Dravet syndrome, just like another little girl, Vivian Wilson, whose parents recently shamed Christie into signing a bill to allow local dispensaries to sell edible products to children.

Problem is, the changes had no real effect because the drug isn’t available here yet — and Christie is now refusing to allow anyone to obtain it from other states with medical marijuana programs.

He’s hated this medical marijuana law from the beginning and has done all he can to bury it in red tape.

To him, these parents are nags: "Every time you sign one expansion, then the advocates will come back and ask for another one," Christie said.

The governor has bigger things, such as his 2016 presidential prospects, to think about. But children like Sabina don’t have time to wait.

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