THE family of a woman who could die in her sleep as her brain slips into her spine have penned her a heartbreaking bucket list.

Jade Davis, 23, has Type 1 Chiari Malformation which results in her losing her sight up to 100 times a day, suffering seizures and gives her tremors in both arms.

10 Jade Davis, 23, has been told she could die in her sleep as she suffers from a condition which is pushing her brain into her spine Credit: Facebook

The condition, which pushes the lower part of the brain into the spinal canal, means that Jade is unable to work, cook or even bath and shower on her own.

Doctors only discovered she had the rare condition after they performed an MRI scan when she developed meningitis.

They have warned Jade, from Saltash, Cornwall, that she could die in her sleep as she "stops breathing for a few minutes every night".

But after two surgeries to try and support her brain, Jade has been told there is no further treatment available and that she's terminally ill with no life expectancy.



Final wishes

Jade's heartbroken family have set up a fundraising page for her in the hope that they can raise funds for her to tick off the things on her bucket list.

Writing on the site, they said: "Those who know Jade know she never asks for anything so we decided to instead.

"We would be grateful of any donations to help us to start ticking things off her list. Finally a massive thank you from all of us."

Their aim is to raise £2,000 so Jade can travel to Thailand, meet her favourite celebrities and attend horse shows.

Jade's heartbreaking bucket list 1. Go to Thailand 2. Jump out of an aeroplane 3. Go to Disneyland Paris 4. Go to watch Olympia horse show 5. Meet British equestrian William Fox-Pitt 6. Go to Winter Wonderland 7. Go to the Newbury races 8. Meet singer James Arthur 9. Meet Chris Hughes from Love Island 10. Weekend in London

Jade's entire life changed after her diagnosis in March 2017 when she was just 21, and forced her to sell her own horse, who she described as her "whole world".

She was working as a groom for event riders and also in a riding school for disabled children when she had to give it up due to her condition.

Forced to give up

Jade has spoken about her heartache at no longer being able to do the things that most 23-year-old's should.

She told the Plymouth Herald: "Since this diagnosis my whole life has changed, there is so much I can’t do because of it.

"I can’t do what I love the most and ride horses, I can’t be left on my own, I can’t be trusted in the kitchen.

Every day is a struggle and I have to put on that brave face and get on with my day Jade Davis

"Every day is a struggle and I have to put on that brave face and get on with my day."

Describing her agony, she said: "I lose feeling in my arms and legs, lose my vision at least 50 to 60 times a day, sometimes up to 100 times a day.

"I get tremors in both my arms, I collapse regularly and have seizures. Every single day my head feels like someone is squeezing it, every day all day."

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She said she has been struggling to come to terms with her condition since the diagnosis two years ago.

Jade said: "I still don’t think that I’ve accepted that I have this condition. I think that’s because I don’t want to accept it.

"I don’t want to accept that my life is limited and eventually I will die, I’ve been told I could die in my sleep so to me I don’t want to accept that."

What is Chiari malformation? A Chiari malformation, previously called an Arnold-Chiari malformation, is where the lower part of the brain pushes down into the spinal canal. There are four main types, but type 1, called Chiari I, is the most common. In someone with Chiari I, the lowest part of the back of the brain extends into the spinal canal. This can put pressure on the brainstem, spinal cord, and obstruct the flow of fluid. The exact cause of Chiari I malformations is unknown. It tends to be present from birth, but is normally only found in adulthood when symptoms develop or when an MRI scan is done. Many cases are thought to be the result of part of the skull not being large enough for the brain. Many people with a Chiari I malformation will not have any symptoms, but if they do they can include: headaches – these are usually felt at the back of the head and may be brought on or made worse by coughing, straining, sneezing or bending over

neck pain

dizziness and balance problems

muscle weakness

numbness or tingling in the arms or legs

blurred vision, double vision and sensitivity to light

swallowing problems

hearing loss and tinnitus

feeling and being sick

difficulty sleeping Treatment depends on the symptoms and how severe they are. Painkillers can relieve any headaches and neck pain but if they are severe, surgery may be offered to relieve the pressure on the brain. Source: NHS

10 Jade was a keen horse rider but had to give it up following her diagnosis Credit: Caters News Agency

10 Jade Davis was diagnosed with Type 1 Chiari Malformation in March 2017 Credit: Facebook

10 The huge scar on the back of Jade's neck after surgery Credit: Caters News Agency

10 Her brother Tyler gives her a kiss as she lies in her hospital bed Credit: Caters News Agency

10 Jade's huge scar on her head after having surgery Credit: Caters News Agency

10 She has since had a tattoo of a zip on the back of her neck following her surgeries Credit: Caters News Agency

10 Jade with her horse who she has been forced to sell because she can no longer ride due to her condition Credit: Caters News Agency

10 The 23-year-old's condition was only discovered when she had an MRI scan while battling meningitis Credit: Caters News Agency

10 Jade with her mum Emma, who has helped write her bucket list Credit: Caters News Agency

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