How do I use seizure diaries? Which one should I use?

Tracking seizures and other information can be done in many ways.

The diary or calendar should be easy enough so you can use it on a regular basis – every time you have a seizure.

It should be one that you can easily share with your doctors, nurses, and other caregivers if needed.

Since many people don’t know what happens during their seizures, diaries should be available for others to write down what they see as well.

Examples of Seizure Diaries

Some people like to write in a journal, while others like forms that can be easily copied. Computers and other technology may let you record seizures on your computer, phone or other electronic device. Seizures can be tracked on a calendar – these make it easy to see when they occur and track patterns. Or use a log or record – these let you write more details about individual events.

The key is to find one that works for you!

Here are a few types to try

Special Instructions

Seizure diaries can be used for different purposes. Sit down with the doctor and nurse to find out what information is most important for you to track What would help your health care team, and what info do you need?

When tracking your seizures while your medicine or treatment plan is being adjusted, make sure you write down when medicine changes are made!

To see if "as needed" ;medicines or treatments are helpful, write down when they are used and if they worked as expected.

To see if triggers or patterns are present, decide what factors you are interested in and write down when they occur.

To monitor side effects of medicines or changes in mood, write down if these are present and when they occur (time of day is important too!).

More Tools

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