Rare Patient Voice connects patients and caregivers with research opportunities.



Who knows better than you about your journey and experiences? We connect you with researchers who are developing products and services which can help you and others with your condition. These researchers need patient input so that they develop products and services that have a meaningful impact on patients’ lives.

When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights.

By signing up , you will receive a $5 (USD) gift card, if you qualify. One gift card per person. Please sign up only once.

, you will receive a $5 (USD) gift card, if you qualify. One gift card per person. Please sign up only once. You will earn $100 (USD) per hour for participating in these studies.

Read more about how we use your information.

You will earn $100 (USD) per hour for participating in these studies.

Read more about how we use your information.

By making your voice heard, you are a catalyst for change. Rest assured that your input will be used to help other patients like you!

We usually have over 100 studies running at any time, so there are many opportunities to participate. Currently, we are looking for patients and caregivers with many different health conditions. However, that does not guarantee we will have surveys for you. You might not hear from us for several months, or you might hear from us twice in one week!

We are proud to say that we’ve rewarded patients with over $5.3 million for participating in surveys in the past six years!