Hillary McKibbin requires a 100 per cent match to cure a rare blood disorder.

The family of a five-year-old girl recently diagnosed with Aplastic Anemia is searching for a perfect bone marrow match.

Aplastic Anemia is a rare fatal blood disorder that affects approximately one in a million people per year.

This disease causes Hillary McKibbin's bone marrow to stop producing enough red cells, white cells, and platelets. McKibbin has to undergo blood transfusions to keep her alive.

She can also no longer attend school and requires constant care.

"We basically keep Hillary inside, in a sterile environment," said Kelly McKibbin, Hillary's mother.

"Life is kind of flipped on its end."

No one in Hillary's family is enough of a genetic match, so the family is now looking to the public for a donor to save their little girl's life.

A drive to test potential donors will be held Monday, June 24, at St. Francis Xavier High School at 3740 Spratt Road, in Riverside South. Canadian Blood Services staff will swab people to see if they're a match and to register them for the National Stem Cell Registry.

The registry is open from 3 p.m. until 7 p.m.

For those unable to attend Monday's in-person registry, you can sign-up online and be entered in the Canadian Blood Services database via a home testing kit.

Hillary's best chance of an exact match is from a man between the age of 17 and 35, but women are being invited to register as well, in the hope of helping others.

A transplant from an unrelated donor provides an estimated 85 per cent chance of survival from Aplastic Anemia.

"We're all looking for that higher purpose, right? And this is just such a really great opportunity, particularly for that younger demographic," said McKibbin. "It's just that chance to do something bigger than yourself."

If the family is able to locate a match, they will have to go to Toronto to undergo three to four months of treatment at Sick Kids Hospital.

Hillary requires a 100 per cent match.

To learn more about Aplastic Anemia and to follow Hillary's bone marrow journey, click here.