Advertisement Oklahoma mom says medicinal marijuana could save daughter Avagrace Spencer diagnosed with Lennox-Gastaut Syndrome Share Shares Copy Link Copy

An Oklahoma family is preparing to separate. They said moving their sick daughter to Colorado is the only way to save her life unless Oklahoma laws change.Watch Dan Thomas' reportAvagrace Spencer, 9, rides her bike, likes playing with her brothers and sisters and looks like a healthy child.“Her highs are really, really good and her lows are really, really bad,” said he mother Virginia Spencer.However, Avagrace could have less than a year to live due to an extremely rare condition. She was diagnosed with Lennox-Gastaut Syndrome.“Basically she has two separate brain wave patterns going on,” Spencer said.Avagrace’s entire brain is slowing down, meaning her organs aren't working well. Her heart even has stopped beating five times in the last year.She has seizures every day, some lasting hours at a time. Her family is desperate to find a way to stop them.“We've already tried over 21 pharmaceuticals,” Spencer said.One thing they haven’t tried is medicinal marijuana. Spencer said at first she was against it because of everything she learned in health class while growing up.As she desperately searched for a cure for daughter online, the research she found changed her mind.Though it could save her daughter’s life, Spencer said she won’t administer the drug to her daughter while in Oklahoma. She is concerned her husband could be kicked out of the military if they brought an illegal substance into the state. She is also concerned they could both be jailed.Avagrace’s mom is seriously considering moving with her daughter to Colorado, where marijuana has been legalized.However, she would have to leave her other kids and husband behind while he is stationed at Tinker Air Force Base.“I just don't want my family to split apart,” said Avagrace’s sister, 7-year-old Violet Spencer.If Avagrace doesn’t get the treatment she needs soon, she may pay the ultimate price.“I will have to figure out how to fall asleep at night knowing that this could be my last moment,” Spencer said.The family’s hope is current laws will be changed in Oklahoma. They will be at the Capitol for a Senate committee meeting on Feb. 12 at 3:30 p.m. in room 419c to make their plea.The meeting is open to the public.