Even as a six-year-old, Kylie Polglase was comfortable talking about her own death from cystic fibrosis, a terminal lung condition.

''If I don't do all this treatment, I will get sick and die,'' she wrote in a picture book more than 20 years ago.

Now a frail 26-year-old, Ms Polglase, of Cherrybrook, is using her limited breath to convince others that talking about death - and creating an advance-care directive on how we want to die - should be a normal part of life.

This week she spoke at the launch of a plan by NSW Health Minister Jillian Skinner to make discussions about the quality of our deaths as common as those about the quality of our lives.