dU101: MEDIA RESOURCES: PRINT: LIFE MAGAZINE November 1995 TITLE: THE TINY VICTIMS OF DESERT STORM

Has Our Country Abandoned Them? PUBLICATION: LIFE Magazine PRINT DATE: November 1995 POSTED FORMAT: HTML and PDF (soon) SYNOPSIS: NOTES: View a one minute video - click here THE TINY VICTIMS OF DESERT STORM  Has Our Country Abandoned Them? Photography by Derek Hudson. Text by Kenneth Miller. Reporting by Jimmie Briggs.

© 1995 Time-LIFE, Inc. When our soldiers risked their lives in the Gulf, they never imagined that their children might suffer the consequences--or that their country would turn its back on them. Jayce Hanson's birth defects may stem from his father's Gulf War service. But like hundreds of other families, the Hansons face official stonewalling--and a frightening future. From outside, the evil that has invaded Darrell and Shana Clark's home is invisible. Set on a modest plot in a San Antonio subdivision, equipped with a doghouse and a swimming pool, the house is a shrine to the pursuit of happiness--a ranch-style emblem of the good life Darrell and 700,000 other U.S. soldiers fought for in the Persian Gulf four years ago.



Inside, the evil shows itself at once. It has taken up residence in the body of the Clarks' three-year-old daughter, Kennedi.



Kennedi was born without a thyroid. If not for daily hormone treatments, she would die. What disfigures her features, however, is another congenital condition: hemangiomas, benign tumors made of tangled blood vessels. Since she was a few weeks old, they have been popping up all over--on her eyelids and lips; in her throat and spinal canal. Laser surgery shrinks them, but they return again and again. They distort her speech, threaten her life. And, inevitably, they draw the stares of strangers. "When people see her," says Shana, "they say, 'Ooh, what happened to your baby?'"



Neither Shana nor her husband can answer that question conclusively, but they suspect that Kennedi's troubles have their origins in the Gulf, where Darrell served as an Army paratrooper. During operations Desert Shield and Desert Storm, he faced a mind- boggling array of environmental hazards. Like an estimated 45,000 of his comrades, he has developed symptoms--in his case, asthma and recurring pneumonia--linked to an elusive affliction known as Gulf War syndrome. And like a growing number of Gulf War veterans, some of whom remain apparently healthy, he has fathered a child with devastating birth defects.



Jayce is remarkably agile. He can feed himself marshmallows or shimmy quickly across a floor. But learning to walk on prosthetic legs is terribly difficult without arms to use for balance. Jayce's mother, Connie, holds up a mirror to help him with coordination. A devout Christian, she faces her family's troubles stoically. "I accept what God has given us," she says, "and try to make the best of it." "He gets ear infections constantly, but he never really cries. You know how most children

scream when they get earaches? Maybe he's immune to pain." -CONNIE HANSON Jayce flying kites with his sister, Amy, he displays a fierce determination. "He's a problem solver," says his father, Paul. Jayce suffers from a syndrome similar to that of the thalidomide babies of the 1950s. But his mother, Connie, took no drugs. Jayce is remarkably agile. He can feed himself marshmallows or shimmy quickly across a floor. Jayce's mother, Connie, a devout Christian, faces her family's troubles stoically. "I accept what God has given us," she says, "and try to make the best of it."



Researchers have been probing Gulf War syndrome since late 1991, when returning soldiers reported a spate of mysterious maladies. Conclusions have been slow to arrive. Last June the federal Centers for Disease Control (CDC) confirmed that Gulf vets were unusually susceptible to a dozen ailments--from rashes to incontinence, hair loss to memory loss, chronic indigestion to chronic pain. But in August a Pentagon study concluded that neither the vets nor their loved ones showed signs of any "new or unique illness." Veterans' advocates disputed that finding, as did the National Academy of Sciences' Institute of Medicine, which declared that the report's "reasoning . . . is not well explained." And while there is, as yet, no absolute proof that Gulf vets' babies are especially prone to congenital problems, patterns of defects have begun to emerge--patterns unlikely to result from chance alone. ( more << back 1 2 3 4 5 next >> EVERYONE COULD USE A PDF READER AT dU101.ORG

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