Makenzie, is 6 years old and has been diagnosed with Metachromatic Leukodystrophy (MLD for short) and it is terminal. She has been a healthy child for the last six years and on March 6, 2012 at 8:00pm our lives shattered. Her temperature spiked and she had a seizure, a 45 minute seizure that left her unresponsive for 24 hours. The longest 24 hours of our lives. Once she started responding again it took almost three days for her to have the strength to open her eyes but she eventually came back to us. She is back to her old wild ways. She will continue to be our sweet Lil’ Mak until the MLD worsens and she starts to regress. She will go from walking and talking to a wheelchair and unable to care for herself before she is taken from us. We have been told it’s a gradual occurrence but we found out late last night that if we can get her into a clinical trial as soon as possible that gradual regression may never happen.All the tests have come back abnormal and the confirmation of MLD was given to us on March 22, 2012. Every doctor we’ve talked to until April 11, 2012 has told us to “accept this diagnosis and make her life as comfortable as possible” but we aren’t the accepting kind of parents. We received a call from Joanne Kurtzburg, the Chief Scientific Officer at Duke University requesting a consultation with Makenzie. She said that Makenzie might be a perfect candidate for the Stem-Cell treatment. The treatment is the ONLY treatment that has shown any promise of a brighter future for our daughter. It has stopped progression in 14-15 other cases like Makenzie’s and if we can get her in the program soon enough we have a fighting chance to save our little girl.We don’t know if insurance will cover any of this or if there are grants for the medical treatments. We are doing all our research now to figure those things out but we need all the help we can get. Please donate anything. We will be spending 6 months in North Carolina with her and the next 18 months at home taking care of her every need. We know we are asking the world of you right now but our world was turned upside down and donations are our only chance of giving our daughter the fighting chance she deserves.