Many younger people with serious disabilities are still being forced to live in aged care homes despite a COAG push to move them out of nursing homes, disability support advocates say.

Many seriously disabled people under 50 have no choice but to live in aged care facilities because it is the only way they can get the care they need.

Five years ago the Council of Australian Governments (COAG) decided to try to address the problem by moving them to more appropriate accommodation.

A report out today says the program has reduced the number of young residents in aged care by 29 per cent, but advocates say that still leaves a lot of young people living in aged care.

When Lynette Smith's father died, her mother had no choice but to put her in an aged care facility. Lynette was only 33.

"The first 12 months more or less I didn't leave my room, there was no activities here or anything that was suited to me," she said.

Next year she will move into a house with four other younger people with disabilities.

"It will be fantastic, more like a home environment. We can listen to music and we get a say in what we want to do," she said.

Ms Smith has been helped by the five-year project set up by COAG in 2006.

In the first four years it moved 139 people out of aged care facilities, and 207 people were prevented from entering such homes. More than 400 young people are staying in aged care, but with extra support.

But the head of the Federation of Disability Organisations, Lesley Hall, says that is not good enough.

"I would have liked to have seen no people under the age of 50 living in aged care facilities," she said.

She says that would have been possible over four years if there was enough funding.

But Dr Bronwyn Morkham from the Young People in Nursing Homes Alliance says the COAG program has been a big success.

"It's just that we still have 6,500 young people waiting in nursing homes for the same opportunity," she said.

They include people like 47-year-old Vicki Witkopp, who had to move into an aged care facility last year after she developed a medical condition that means she needs the support of two nurses.

Ms Witkopp is engaged and wants to move into a home with her fiance, with nurses coming in during the day.

"To contemplate that my husband might have to come in every night for a couple of hours for the next 40 years is ludicrous," she said.

The Federal Government has guaranteed funding, so the 1,100 people already helped by the COAG program will not have to end up in nursing homes.

But it is up to the states and territories to provide funding for additional people to be diverted from aged care facilities.