Zoë was born with a very rare genetic disorder: Treacher Collins Syndrome which causes severe craniofacial defects.As a result of this she has no outer ears (severe hearing loss), a tracheostomy (cannot speak), a g-tube (feeding tube), and various other medical complications which will require her to have several surgeries during the course of her life.Right now, we are trying to focus on jaw surgery so that she achieve decannulation (not having to breathe through a hole in her neck).We are asking for this funding for the costs that will come up throughout the course of her life. We would like to eventually be able to take her to the Craniofacial Institute in Texas, where a highly qualified doctor, Dr. David G. Genecov , is willing to help asses and plan this process for us.Since Zoë requires full-time medical assistance, Mom needs to stay home as her primary care giver and we are a single income family and it is just not feasible to cover these expenses.Any and all help is appreciated as we take her on this long journey towards becoming closer to a normal little girl.As a final note. Any funds not needed and / or above our expenses will be donated to craniofacial research and / or charity.Zoe's new web-site can be found at https://zoejaneanne.wordpress.com . Please visit and leave a comment or message for us...