Craniosynostosis – the coronal suture has prematurely fused

My ten month old grandson is a happy, quick, engaging little fellow who was born with the plates of his skull fused together prematurely. As a result, he is facing major surgery to cut the plates and reshape his head which has grown lopsided. Emmett’s surgery is on Wednesday Nov. 19 at 9am Eastern Standard Time. The surgery will take between 5-7 hours, but it could take up to 10 hours.

Details of the surgery are as follows: an incision is made from ear to ear, the skull is removed from the orbital bone to the centre of the head. After the neurosurgeon removes a piece of his skull that has fuse prematurely, a plastic surgeon will reshape the skull. Then the surgeon will put it back together using plates and screws which are made of a dissoluble substance. They use between 150-200 screws. There is a 50/50 chance Emmett will need a blood transfusion.

He will be in ICU for the first 24 hours, completely sedated and unconscious and then moved to a room on Thursday evening. He will be in Children’s Hospîtal of Eastern Ontario ( CHEO) for 5-7 days.

We have been for warned that there will be significant swelling. Emmett’s eyes will most likely be swollen shut for the first few days after surgery. His arms will be bandaged to splints and immobile so he cant’ touch his face and head Recovery time is approximately 6-8 weeks and he may have to wear a helmet (this will be decided post-op)

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Here are images of what we can expect to see when we can visit on Friday and as he heals during the week

I am reaching out to all the warm hearted lovers of God who have connected with me these past two years. I humbly beg for prayers- to lift off worry and anxiety, stress and fear off the adults involved so that Emmet’ soul will be soaked in peace and the Love of God.

I pray God fills that surgery room with the light of heaven, filling every corner with His angels and that He guides the hands of the surgeons.

I am so grateful that I am moved to tears because I know that I can rest in the arms of your prayers

Thank you everyone