#MEAction reported recently that the #MillionsMissing protests led to a number of meetings with government officials, including a meeting with Assistant Secretary for Health and Human Services Karen DeSalvo, and several meetings with congressional representatives.

Continued work from the Congressional team at #MEAction has yielded fruit.

[pullquote align=”left” cite=”” link=”” color=”” class=”” size=””]Reps Zoe Lofgren (CA-19) and Anna Eshoo (CA-18) have agreed to co-sponsor a House of Representatives letter to the NIH[/pullquote]

We are proud to announce that U.S. Representatives Zoe Lofgren (CA-19) and Anna Eshoo (CA-18) have agreed to co-sponsor a U.S. House of Representatives letter to National Institutes of Health (NIH) Director Francis Collins. The letter solicits information about the NIH’s current and future ME/CFS program and encourages the NIH to strengthen ME/CFS biomedical research efforts (ME/CFS is the Representatives’ preferred terminology). The language in the letter was drafted by the two Congresswomen’s offices and is therefore not subject to change.

The letter is currently being circulated for additional signatures in the U.S. House of Representatives.

We need your help to add your representative’s signature to the letter. We are running on a deadline of representatives’ sign-on has been extended to Wednesday, September 7!



Can you help us strengthen this letter by requesting that YOUR representative sign? Imagine the letter signed by representatives from every state and the impact that might have.

Ready to advocate? Click below.