@HappyMaskedGuy I also want to apologize for quoting you at the end of my post with the use your brain thing. That might have been in poor taste sorry. Also apology accepted.

I think that perhaps people just don't understand. It's also possible that a lot of them didn't watch the video that more fully explained things. Make-A-Wish deals with lots of kids that have really rare diseases and that can make it harder to know how to deal with it for a unknowing passerby. For example I didn't know what Rett syndrome was. I had to look it up. It sounds rough and I wish your niece well! I found this site that talks about positive research towards a possible cure for Rett syndrome: https://www.duncannri.org/ It's not anything yet but I figured maybe it could give you and your family some hope to know someone out there is working towards it.

My little sister has Leukodystrophy, perhaps a rare disease you haven't heard of before, it makes it so she can barely stand unaided and now even as a 12 year old she crawls around to get places. It slows her speech and she can't swallow liquid normally so she has to get it through a tube in her tummy. It also makes her mentally stuck at around a 5 year old's mental state. She has an unexpected life expectancy, the doctors originally didn't think she'd even make it to 8-10 years old. She has to work everyday with my mom to exercise to keep her body from constantly deteriorating itself.

Coincidentally she also got a playground from Make-A-Wish and she loves it very much. She's always happy to share it with family and friends. You could say she brings a smile to everyone who knows her and her loving heart.

So to me seeing this article was something special because it reminded me of our own struggles at home, but not everyone who has family troubles will always want to post about it on the general internet. And not everyone has experienced something remotely similar so I think it's easiest to just realize that and move on. Ignorance is bliss so perhaps the insensitive people in this comments thread have just been fortunate enough in their family lives to not know the hardships of such illnesses.

Hang in there you seem like a genuine great person!