WHY TAKE ON SUCH A CHALLENGE?

I want to raise awareness

Awareness that EDS is an under diagnosed condition

Awareness that chronic illness can be unseen and misunderstood

Awareness that the seemingly impossible can be achievable



Awareness that the pain I will endure on this challenge is no worse than the pain those with EDS have to endure every day.

Awareness of the extra considerations of my everyday life (medications, gastroparesis, pacing, anaphylaxis, contingency plans, etc...)

I have had to reimagine my life goals and forgo some of my dreams and ambitions to focus being well enough to get out of bed in the morning. Having spent four years focusing solely on building my strength now is my time to achieve.

I want to be joined and meet as many as people as possible on my journey