Devin Scullion, the Hamilton man who defied the odds by living with a rare genetic condition longer than any other person, has died.

We are devastated to hear about the passing of one of the bravest members in the TigerTown community. RIP Devin. pic.twitter.com/zrnQW2mggA — Hamilton Tiger-Cats (@Ticats) January 23, 2017

Scullion suffered from progeria, a condition that causes pre-mature aging. Most children with the disease don’t live past the age of 13.

As a 16-year-old, Scullion and his mother spoke to CityNews reporter Avery Haines back in 2012 about the struggles, and the milestones, thanks to a new drug which was helping him beat the odds.