Transcript Hi, I’m Ramsey. I’m an undergraduate studying computer science in Toronto, Canada and this is how I live in the Limelight.



When I was seventeen years old, I was diagnosed with chronic fatigue syndrome, or CFS.



People with CFS can exhibit both severe cognitive deficits and mobility impairments. Many patients can’t work, and are permanently disabled.



Although CFS is estimated to affect millions of lives worldwide, it has been described as the most underfunded major disease today.



At my worst, I was on medical leave from school, bed-bound for weeks because of the crippling physical pain.



One morning, there was a fire in my building, and all the residents evacuated - except for me.



But that isn’t always the hardest part of having CFS. Because the physical isolation makes it very difficult to maintain friendships.



Thankfully, i managed to find a group of patients who used an online messaging app to build their own support group.



Overnight, my phone became a portal to reach over eighty other patients in a dozen countries, each with their own story about living with CFS.



And when my condition stabilized and I returned to my studies, these supports evolved into lasting friendships.



So the best thing I did since I got sick.



I got help.



And now, me and my friends are contributing whatever we can to help other CFS patients, wherever they are.



So far, we've developed and are maintaining an active patient-sourced database of treatment anecdotes and research summaries.



Imagine wikipedia, but full of scientific citations and accessible language that not only patients, but hopefully healthcare practitioners and policymakers alike can make use of.



I've also helped us establish a working relationship with the largest US-based charity for CFS advocacy.



Our current project is to provide patients with better access to their genetic data, in order to help inform treatment options.



Additionally we will contribute this data to the first ever geånetic database of CFS patients being developed by researchers at Nova South Eastern University.



This is how I’m rocking my disability!