Calling on the Scottish Parliament to urge the Scottish Government to make additional funding available for the immediate prescription of Ivacaftor (Kalydeco) whilst awaiting SMC approval in order that patients do not suffer as a result of administrative delays.

Petition History:

Summary:

22 January 2013: The Committee agreed to close the petition under Rule 15.7 on the grounds that that the Scottish Government has announced a new fund to cover the cost of medicines for individual patients with rare conditions which are not available for routine prescription and further announced that it would take action to ensure there is no barrier to clinicians prescribing Ivacaftor. In closing the petition, the Committee also agreed to bring it and the petitioner's most recent submission to the attention of the Health and Sport Committee. Link to Official Report 22 January 2013 (393KB pdf)

Written Submissions: