Charlotte had to have scans every two weeks throughout her pregnancy and at 37 weeks, Evlyn was delivered by caesarean as the blood flow to her mum's placenta had started to fail.

The newborn was rushed to a ventilator as soon as she was born and mum Charlotte did not get to see her for seven hours - and could not hold her for three days.

Evlyn's narrowed airways meant she could not breathe on her own and so could not have the heart surgery she needed to survive.

But even if the little girl had pulled through, doctors told her parents she would have faced a life with hearing, sight and speech problems and severe mental and physical disabilities.

While Charlotte would give anything to have her daughter with her, the mum said she knows that Evlyn is in a better place.

After sharing her experience of having those 16 days with Evlyn, Charlotte realised a lot of people were unaware that the option was there for grieving parents and she now wants to raise awareness.

Charlotte said: "When we got the news after the 20 week scan, Attila and I completely broke down. I think we broke down more then than when we lost her because at that point we just had no idea what it all meant.