Law Professor Claims Any Internet Company 'Research' On Users Without Review Board Approval Is Illegal

from the you-sure-you-want-to-go-there dept

Research means a systematic investigation, including research development, testing and evaluation, designed to develop or contribute to generalizable knowledge.

For one thing, many academic journals require Common Rule compliance for everything they publish, regardless of funding source. So my colleague Leslie Meltzer Henry and I wrote a letter to the journal that published the Facebook emotional manipulation study, pointing out the obvious noncompliance. For another, nothing in Facebook’s user agreement warned users they were signing up to be test subjects. So we wrote a second letter to the Federal Trade Commission, which tends to get upset when companies’ privacy policies misrepresent things. And for yet another, researchers from universities that do take federal funding can’t just escape their own Common Rule obligations by “IRB laundering” everything through a private company. So we wrote a third letter to the federal research ethics office about the Cornell IRB’s questionable review of two Cornell researchers’ collaborations with Facebook.

Thank you for reading this Techdirt post. With so many things competing for everyone’s attention these days, we really appreciate you giving us your time. We work hard every day to put quality content out there for our community. Techdirt is one of the few remaining truly independent media outlets. We do not have a giant corporation behind us, and we rely heavily on our community to support us, in an age when advertisers are increasingly uninterested in sponsoring small, independent sites — especially a site like ours that is unwilling to pull punches in its reporting and analysis. While other websites have resorted to paywalls, registration requirements, and increasingly annoying/intrusive advertising, we have always kept Techdirt open and available to anyone. But in order to continue doing so, we need your support. We offer a variety of ways for our readers to support us, from direct donations to special subscriptions and cool merchandise — and every little bit helps. Thank you.

–The Techdirt Team

For many years I've been a huge fan of law professor James Grimmelmann. His legal analysis on various issues is often quite valuable, and I've quoted him more than a few times. However, he's now arguing that the now infamous Facebook happiness experiment and the similarly discussed OkCupid "hook you up with someone you should hate" experiments weren't just unethical,. Grimmelmann, it should be noted, was one of the loudest voices in arguing (quite vehemently) that these experiments were horrible and dangerous, and that the academic aspect of Facebook's research violated long-standing rules.But his new argument takes it even further, arguing not just that they were unethical, but flat out illegal , based on his reading of the Common Rule and a particular Maryland law that effectively extends the Common Rule. The Common Rule basically says that if you're doing "research involving human subjects" with federal funds, you need "informed consent" and further approval from an institutional review board (IRB), which basically all research universities have in place, who have to approve all research. The idea is to avoid seriously harmful or dangerous experiments. The Maryland law takes the Common Rule and says it applies not just to federally funded research but "all research conducted in Maryland."To Grimmelmann, this is damning for both companies -- and basically all companies doing any research involving people in Maryland. In fact, he almost gleefully posts a letter he got back from Facebook concerning this issue and alerted the company to the Maryland law. Why so gleeful? Because Facebook's Associate General Counsel for Privacy, Edward Palmieri, repeatedly referred to what Facebook did as "research," leading Grimmelmann to play the "gotcha" card, as if that proves that Facebook's efforts were subject to that Maryland law (making it subject to the Common Rule). He further then overreacts to Palmieri, noting (accurately, in our opinion) that the Maryland law does not apply to Facebook's research as Facebook is declaring that the company "is above the law that applies to everyone else."Except... all of that is suspect. Facebook is not claiming it is above the law that applies to everyone else. It claims that the law does not apply to it... or basically any company doing research to improve its services. Grimmelmann insists that his reading of Maryland's House Bill 917 is the only possible reading, but he may be hard pressed to find many who actually agree with that interpretation. The Common Rule's definition of "research" is fairly broad, but I don't think it's nearly as broad as Grimmelmann wants it to be. Here it is:I think it's that last bit that may be problematic for Grimmelmann. It focuses onresearch "designed to develop or contribute to generalizable knowledge." That wording, while unfortunately vague, really appears to be focused on those who are doing research for the purpose of more publicly available knowledge. And whilethe Facebook effort touches on that, since it eventually became published research, it still seems like a stretch. Facebook wasn't doing its research for the purpose of contributing to generalizable knowledge -- but to. Based on that, the companyshared some of that data publicly. Similarly, OkCupid's research was to improve its own services.But under Grimmelmann's interpretation of the law, you'd have some seriously crazy results. Basic a/b testing of different website designs could be designated as illegal research without IRB approval or informed consent. I was just reading about a service that lets you put as many headlines on a blog post as you want and it automatically rotates them, trying to optimize which one gets the best results. Would that require informed consent and an IRB? Just the fact that companies call it "research" doesn't make it research under the Common Rule definition. How about a film studio taking a survey after showing a movie. The movie manipulates the emotions of the "human subjects" and then does research on their reactions. Does that require "informed consent" and an IRB?How about a basic taste test -- Coke or Pepsi? Which do you prefer? It's research. It's developing knowledge via "human subjects." But does anyone honestly think the law for running a taste test means that any company setting up such a taste test first needs to get an IRB to approve it? The results of Grimmelmann's interpretation of the law here are nonsensical. Grimmelmann is clearly upset about the original research, and certainly there were lots of people who felt it was creepy and potentially inappropriate. But Grimmelmann's focus onthese companies is reaching obsession levels.And that's before the letters to Facebook and OkCupid -- and, of course, to Maryland's attorney general , Doug Gansler. Of course, if Gansler actually tried to enforce such an interpretation of the law (which is not out of the question, given how quick many attorney generals are to jump on grandstanding issues that will get headlines), it would represent a very dangerous result -- one in whichin all sorts of industries (beyond just the internet) would suddenly create a risk of law-breaking. That's a result incompatible with basic common sense. Grimmelmann's response to that seems to be "but the law is the law," but that's based entirely on his stretched interpretation of that law, one that many others would likely challenge.

Filed Under: common rule, experiments, human subjects, informed consent, irb, james grimmelmann, maryland, research

Companies: facebook, okcupid