Hello internet!



My name is (Taylor) Drew Nordman and I am seeking financial support towards funding and sustaining 24 hour homecare for myself as a disabled quadriplegic.



I am a 31 year old guy from Winnipeg, born with a debilitating and degenerative neuromuscular disorder known as Type 2 Spinal Muscular Atrophy. In short, it causes my nervous system to miss-communicate with my muscles and over time, results in the loss of the majority of my muscles’ functionally. As I have never been able to walk, I am wheelchair bound and require 24 hour care. For the past three decades, my parents and family have been my primary caregivers, assisting my daily living and needs, however it is rapidly becoming an untenable situation as my parents approach their golden years. I don’t want my life to put theirs at risk, especially after they’ve already given up so much just to ensure that I live as normal a life as possible.



As a Canadian citizen, I am fortunate enough to fall under the Self managed Homecare umbrella provided by the province of Manitoba. Over the past six years, I have had part time care aides offer much needed respite to my family. Unfortunately, now that my parents are retired, the government expects them to care for me even more and will only provide me with two days a week in home care, leaving 108 hours a week that my elderly parents need to cover. It’s too much for them to handle.



In order to fund 24 hour care across multiple health care aides, it would cost roughly $150,000 a year. No small number. A ludicrous number in fact. However, if I could raise enough funds in order to cover even one or two extra days a week, it would not only allow me to live a more independent life, but go a long way towards extending my parents’ lives and well-being.



The money raised by this campaign will go directly towards the salaries of the health care aides whom I’ve chosen to provide my care.



Thank you so much for reading and if you choose to donate or share my story, please know that you have my sincerest of gratitude and appreciation.





Thanks,

-Drew

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