Ms Bowd said surgeons in Australia could not perform the delicate surgery her son required and the family had turned to US specialist Joel Gelman for help.

“The larger it gets the more difficult it is going to be for Tyrone. It is interfering with his day-to-day life,” she told Ten News.

“[There’s] not even the right equipment in Australia to perform the surgery and if I was to sign on the dotted line I would be signing my son’s life away.”

Mr Bowd, who is also living with autism, described the illness as “uncomfortable and frustrating”.

“It’s hard to do stuff all the time and it’s hard to go places,” he said.