Megan Crowley, who was diagnosed with Pompe disease at 15 months old, with her father, John.

A patient with a rare disease will get a private meeting with Trump

WASHINGTON — A young woman whose father founded a biotechnology company in pursuit of a treatment for her rare disease will be front and center on Tuesday night for President Trump’s address to a joint session of Congress.

Megan Crowley, a college student who was diagnosed with Pompe disease at 15 months old, will be seated alongside first lady Melania Trump during the address. Beforehand, Crowley and her father, John, will meet with Trump in the Oval Office to discuss rare disease treatments.