One thing is for sure though. We know deep within our hearts that we have always had Charlie's best interests in the forefront of our minds and despite what some people think of us, we will try to walk away from this with our heads held high. As I said, we know the truth, and in our hearts we know that we have done all of this for our darling little Charlie. We have never done this for selfish reasons. We didn't keep him alive just because we couldn't bear to lose him.

Charlie had a real chance of getting better. It's now unfortunately too late for him but it's not too late for others with this horrible disease and other diseases. We will continue to help and support families of ill children and try and make Charlie live on in the lives of others. We owe it to him to not let his life be in vain.

We would like to thank our current legal team who have worked tirelessly to try and save Charlie's life and they have not asked for a single penny. They won't even let us buy them a coffee. They have done it out of the kindness of their hearts because they believed in us and they certainly believed in Charlie.