Genni Buckingham has travelled to Las Vegas to see Celine Dion twice but her plan under the National Disability Insurance Scheme has left her struggling to travel a few suburbs away for essential medical appointments.

The 31-year-old from Kellyville values her independence and had high hopes for the scheme when she joined last year but says her transport budget has been cut by three-quarters, leaving her scrambling to make her funding stretch to cover her needs.

"This left me feeling completely isolated and worthless which is completely opposite of what the NDIS claims to be about," she said.

Ms Buckingham, who has cerebral palsy and Crohn's disease, said her problems with the scheme started almost immediately when her planner attempted to devise the plan in a phone call.