Sarah and her partner Michael, not their real names, discovered early last year when she was 12 weeks pregnant that their unborn son had Edwards’ syndrome.

The genetic condition disrupts babies’ natural development. Of those that survive to birth, about half will die within two weeks and only one in every five will live at least three months.

“I was told he had no chance,” Sarah says. “And I wouldn’t have done anything if I had any hope, I wouldn’t have done anything. And there was no hope.”

Sarah, whose sister had suffered a stillbirth, adds: “After seeing what my sister went through, there was no way I wanted to be away from my family and be so far away from home and deliver my