There are basically no approved treatments for Kernicterus in the US, which leaves unapproved treatments. He received a bone marrow stem cell transplant in Mexico (your stem cells become classified as a drug by the FDA once they leave your body, hence why it's not allowed here). So far if we've seen any improvements, they're very minor. Nothing like you hear about celebrities like Gordie Howe, John Brodie, or Bart Starr who could walk after stem cell treatments. There's no way to know if this is because Kernicterus is just that much worse than other brain injuries or if it's that I would need to bump up to embryonic cells, which can cause tumors, and which they won't use on children even in Mexico. We also got him a hyperbaric chamber which, according to recent studies, leads to improvements in patients with cerebral palsy, though kernicterus is rare enough that it's not part of those. We've also heard of other children using thc/cdb oil with a lot of success (in 2 cases even restoring the hearing of all things), so we've begun the process of applying for a medical marijuana card.

None of these things are covered by insurance (which, being an indie, I need to pay for in full), so you can imagine how thankful I am that Axiom Verge can support the tens of thousands of dollars this is costing. We have also begun a malpractice lawsuit - but this is a years long process that is just in its infancy, and may not really cover the overall costs anyway.