Why Do Some ASD Children Take Longer to Potty Train?

There are myriad reasons children on the spectrum often remain in diapers, pull-ups and youth pants longer than their neurotypical peers. Sometimes it’s a developmental delay and the child is not able to recognize he/she has to go potty or maybe the child doesn’t have the adequate skills to maneuver clothing in time to use a toilet.

Children with communication challenges are less likely to be able to tell someone else he/she has to go to the bathroom. Those children who take medication with sleepy side effects may also find it difficult to wake up in time to go to the bathroom. And children with severe autism often don’t have the cognitive and motor skills to use a toilet — making the task that much more difficult to master.

It’s important to remember every child has different abilities and will develop at his/her own pace. Your child may need to use big kid diapers or pull-ups for a little bit longer than others. And once potty-trained, sometimes some protection is still needed overnight. With the costs averaging hundreds of dollars per month, it’s important to find an excellent source for well-priced big kid diapers and pull-ups and perhaps some financial assistance.

How do I Find Financial Assistance?

As you probably know by now, diapers and pull-ups are costly, especially when needed long-term. First, talk to your child’s doctor about your options as a great number of children on the spectrum qualify for some financial assistance for medically-needed supplies and equipment.

Medicaid

If your child is eligible and enrolled in publically-financed medical services such as Medicaid, he/she is likely covered by a provision called Early and Periodic Screening, Diagnosis, and Treatment (EPSDT). Every state plan is required to make certain services available to all children from birth through age 21 and this program ensures children not only receive a diagnosis, but appropriate treatment.

This includes medically necessary supplies and equipment, so if a child is diagnosed with incontinence, this usually includes diapers for children beginning at age three with a prescription from a doctor.If your state denies your request for diapers for some reason, you can appeal the decision as they are required to comply as indicated by 42 CFR section 440.70 under Home Health Services.

Remember, the rules governing states differ, with some states permitting coverage before three years old if there is a medical diagnosis while others make families wait until a child is a bit older. It’s also important to point out that states also vary in which diaper or pull-up brands they will cover with some restricting coverage to only certain brands. Unfortunately, not all states will pay for pull-ups.

Request information from your particular state and talk to your child’s doctor and a Medicaid representative to ensure you can make the most of on your options. You may need to use the phrase, ‘disposable incontinent supplies’ when researching or applying for assistance.

Private Insurance

Private insurance plans are not required to provide comprehensive benefits and many do not cover diapers or other incontinence supplies. Some insurance companies, however, will cover a portion or the full-price of diapers, pull-ups and youth pants for children with special needs because they are a necessity. It is worthwhile to find a vendor who will attempt to bill your private insurance, because you may be surprised to find the supplies approved.

There have been incidences where a private insurance company has sent out a denial letter stating the policy did not cover incontinence supplies and then when the insurance company was billed for the supplies under standard medical supply codes, the bills were paid. It’s important to keep your receipts because you may need to pay for diapers and/or pull-ups upfront and then be reimbursed from your insurance company.

Most companies require a letter from the doctor explaining the requirement as well as a prescription for disposable incontinent supplies. Always call your insurance company to check what they specifically require.

A Buying Guide to Finding Large Diapers, Pull-Ups and Youth Pants

It can be a challenge finding big kid diapers, pull-ups and youth pants for older children as they aren’t typically stocked in your local grocery or big box store. Once your child graduates to “big sizes” (over size 6), you may need to use a medical supply store or an online medical supply retailer to special order diapers.

In addition to using the words ‘large diapers‘ in your search, try adding the word ‘incontinence.” Many companies don’t use the word ‘diaper’ once a certain size is reached and they are commonly referred to as ‘pull-ups’ or ‘youth pants.’





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Big Kid Diapers, Youth Pants and Pull Ups Highly-Rated by Parents

It can be a challenge to find those ‘in-between’ sizes for children still in need of daytime and/or nighttime protection as they are often too big for many typical baby diapers but then still too small for adult-sized protection. It may be worth checking out the cost and quality of store/pharmacy-brand products.

Here are several name-brand products parents of children on the spectrum have used with success. Some websites offer excellent discounts and even free shipping on bulk orders so be sure to do a little research. Some of the links below are amazon affiliate links so if you buy through these links Autism Parenting Magazine will receive a commission. As an Amazon Associate I earn from qualifying purchases.

Cuties®

Up to size 6 – 35+ lbs

Cottony soft outer cover

Soft stretchable waist and side panels

Excellent leakage protection

Hypoallergenic – extra soft inner liner with organic botanicals, vitamin E and aloe

Seventh GenerationTM Diapers

Up to size 6 – 35+ lbs

Premium absorbency

Totally free from chlorine processing

Hypoallergenic

Free of fragrance, inks and petroleum-based lotions

Snug, flexible fit

Pampers Cruisers® Diapers

Up to size 7 – 41+ lbs

3-way fit adapts at the waist, legs, and bottom

Up to 12 hours of overnight protection with some sizes

3 layers of absorbency versus only 2 in ordinary diapers

Pampers UnderJams® Absorbent Nightwear

Up to size L-XL – 58-85 lbs

Quiet, cloth-like material

Designed to be like underwear to let skin breathe

Attends® Youth Pull-Ups

Sizes Youth/Small Adult to Adult XL – Youth/Small Adult fits waist size 22″-36″ – 80-125 lbs

Super absorbent polymer channel

Helps prevent odors

Breathability with air flow material to keep skin dry

Discreet packaging

EZ SOX® Training Underwear

Up to size 4-5 years – 36-46 lbs

Tag-free

Embroidered oval handles sewn into our super soft wide waist band that allow for an easy grip

95% Cotton, 5% Spandex

GoodNites® Underwear

Up to size L/XL – 60-125 lbs.

40% more absorbent than training pants

Zoned protection for boys and girls

Super stretchy sides fit many body shapes and sizes

Prevail® Extra Absorbency Underwear

Sizes Youth/Small Adult to Adult 2X Large – Youth/Small Adult fits waist size 20″-34″

Discreet absorbent protection

Locks in moisture fast for added leakage protection and odor control

Silky-soft outer fabric is softer and more comfortable

Ventilated waist panels allows air to pass through to reduce heat build-up and promote healthy skin

Curity® Youth Pants Night and Day (formerly called Curity Sleep Pants)

Up to size XL – 85 to 125 pounds; absorbency: 15 oz.

Ideal for youths who have outgrown toddler training pants or need heavier protection

Feature a tear-away side seam on the waistband for quick and easy garment changes.

Tranquility All Through the Night (ATNTM) Disposable Incontinence Brief

Sizes Youth XS Youth fits waist size waist/hip size of 18″- 26″

Highly absorbent

High capacity for holding urine

Guarantees skin dryness

Neutralizes urine – inhibits bacterial growth

Capacity is 18.5 oz of urine in the youth size

Cloth like backing

Latex free

FuzziBunz® (cloth reusable diapers)

Up to size L – 45+ lbs

Placement of snaps allows for customizable fit

Best choice for ease of use with daycare and other care givers

Durable fabric makes for easy wash and wear

1 year warranty

Medical Supply Retailers

You may find better prices on larger diapers, pull-ups and youth pants through a medical supply retailer. As previously stated, some insurance companies and Medicaid may require the diapers come from a specific retailer, so keep that in mind.

Here are a few medical supply retailers families with children on the spectrum have recommended:

The Medical Supply Group

http://www.medicalsupplygroup.com/c-888-child-protective-underwear-pull-ups.aspx

Cristia Medical Supply

https://www.facebook.com/CristiaMedicalSupply

This article was featured in Issue 34 – Autism Sleep, Bedtime and Hygiene Routines