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IF IT MEANS THEY WILL PAY FOR THAT SURGERY OUT OF THEIR OWN POCKETS. >> HIS 5 WORDS HE HAS IS MOMMA, DADDY, YES, NO, POOP AND HULK. NICHOLE: 3-YEAR-OLD NOAH CONNALLY LOVES THE INCREDIBLE HULK. HE SAYS THEY HAVE THE SAME STOMACH. EVEN THOUGH THE HULK’S MARKS ARE DUE TO MUSCLE, AND LITTLE NOAH’S ARE BECAUSE OF SCARRING. >> NOAH WAS BORN WITH HPLH SYNDROME. NICHOLE: ESSENTIALLY, ONLY HALF OF HIS HEART IS FULLY FORMED. HE’S ALREADY HAD MULTIPLE SURGERIES. >> HIS FIRST SURGERY WAS WHEN HE WAS IN UTERO. NICHOLE: NOAH AND HIS FAMILY LIVE IN ORANGE COUNTY, CALIFORNIA. BUT THEY MADE THE CHOICE TO COME TO BOSTON, FOR POTENTIALLY LIFE-CHANGING SURGERY AT CHILDREN’S HOSPITAL >> THIS IS WHERE HE NEEDS TO BE. THIS IS THE SURGERY THAT HE NEEDS. HE IS HERE TO GET A BI-VENTRICULAR REPAIR WHICH WILL USE HIS OWN BODY PARTS TO GIVE HIM BACK A FULL WORKING HEART. NICHOLE: A CHANCE AT LIVING WHAT HIS PARENTS CALLS A TYPICAL LIFE. A SURGERY THAT ISN’T OFFERED CALIFORNIA, AND ONE FOR WHICH THEIR INSURANCE COMPANY HAS DENIED COVERAGE. THEY APPEALED AND WERE DENIED AGAIN. >> IT’S JUST UNREAL, THE ONLY PLACE IN AMERICA THAT CAN GIVE OUR SON WHAT HE NEEDS AND OUR BLUE CROSS INSURANCE IN CALIFORNIA WON’T HELP US PAY FOR IT. NICHOLE: THE CONNALLYS HAVE DECIDED TO MOVE FORWARD, EVEN THOUGH THEY COULD POTENTIALLY BE IN DEBT FOR THE REST OF THEIR LIVES. >> WE’RE WAITING FOR AN ESTIMATE FROM BOSTON CHILDREN’S BUT WE’VE BEEN TOLD UPWARDS, CLOSE TO A MILLION. NICHOLE: A LOT OF MONEY FOR THIS FAMILY. THEY’RE BOTH TEACHERS, THEY HAVE 4 OLDER DAUGHTERS, AND THEY LIVE WITH NICCOLE’S PARENTS TO HELP SAVE MONEY. BUT THEY’RE WILLING TO CONTINUE SACRIFICING IF IT MEANS GIVING THEIR SON A FIGHTING CHANCE. >> IT’S A LOT AND I KEEP REFLECTING ON THAT NUMBER AND ALL I CAN COME UP WITH IS THAT AS PARENTS WE’LL DO ANYTHING FOR OUR KIDS. NICHOLE: NOAH CHECKS IN TOMORROW. HIS 10 HOUR SURGERY IS SCHEDULED FOR THURSDAY. THE FAMILY IS STILL HOLDING OUT HOPE THAT THEIR APPEAL WILL BE APPROVED BID THEY TELL ME THEY HAVE HEARD BACK FROM ADMINISTRATORS WHO SAY IT IS UNDER REVIEW. IF YOU WOULD LIKE TO DONATE TO THE FAMILY, WE HAVE A LIN

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Noah Connally faced enormous adversity before he was even born. His parents say he was diagnosed with hypoplastic left heart syndrome during a 20-week ultrasound. The left side of his heart cannot effectively pump blood to his body, so only half of his heart is fully formed.Sean and Niccole Connally decided to try a risky in-utero operation to save Noah's left ventricle when Niccole was 28 weeks pregnant. Unfortunately, his left ventricle remained underdeveloped.Noah is now 3 years old and has already had multiple heart surgeries. He says he has the same stomach as his favorite superhero, the Incredible Hulk. While the Hulk's marks are from his muscles, Noah's are due to scarring.The Connallys, who live in Orange County, California, have come all the way to Boston for a potentially life-changing surgery at Children's Hospital. The surgery is not offered in California and it would give Noah the chance to live what his parents call a "typical" life."This is where he needs to be. This is the surgery that he needs," said Niccole Connally. "He is here to get a biventricular repair, which will use his own body parts to give him back a full working heart."But there is one big problem -- the family's health insurance company won't cover the cost of Noah's surgery. "Hours before we left for our trip to come here last week, we got a call saying that you have not been preauthorized," said Sean Connally.His parents appealed, but they were once again denied, even though Boston Children's Hospital is one of the only hospitals equipped to do the surgery. "It's just unreal," said Niccole Connally. "The only place in America that give our son what he needs, and our Blue Cross insurance in California won't help us pay for it."The Connallys have decided to move forward, even though they could be in debt for the rest of their lives. They are waiting for an estimate from Boston Children's Hospital, but they have been told it could cost about $1 million.Sean and Niccole Connally are both teachers and have four older daughters. The family lives with Niccole's parents to help save money, but they are willing to continue sacrificing to give Noah a fighting chance."It's a lot, and I keep reflecting on that number, and all I can come up with is that as parents, we'll do anything for our kids," said Niccole Connally."It doesn't matter if it's a million (dollars) or $6 million, you know, we're going to keep fighting for our son and make sure he has the best possible outcome," said Sean Connally.Noah will check in to Children's Hospital on Wednesday, and his 10-hour surgery is scheduled for Thursday.The family is still holding out hope that the insurance company will reverse its decision. Administrators from the insurance company told the Connallys that their case is under review.To learn more about Noah's journey and how you can help the Connally family, click this link.