Rare Cancer Day 2020 To Take Place on September 30 “Spearheaded by the NORD Rare Cancer Coalition, Rare Cancer Day is observed to bring attention to the challenges patients and caregivers face, raise awareness of the need for greater research funding, early diagnosis and patient support, and unify individuals living with rare cancers. ” Read more >

A Newborn Screening Reflection: Sarah’s Story “September is Newborn Screening Awareness Month, and I’d like to share our family’s experience with it and why we think every parent should know more about this incredible test” Read more >

Voices of Rare Cancer: Jeremy’s Story “Leading up to #RareCancerDay on September 30, NORD will be sharing facts, information and patient stories. Here, Jeremy shares his experience with pseudomyxoma peritonei (PMP), and the role genomic testing has played in his treatment.” Read more >