My daughter Kylie is 18 months old and was diagnosed with a rare genetic disease called Cystic Fibrosis. She takes a total of eight medications and recently discharged from the hospital and to our surprise two of her new medicines were rejected by Medicaid. Please help us fight against this terminal disease. Share with your friends!



My daughter Kylie was born 2 months early with meconium ileus. An hour after birth Kylie was getting surgery the surgeon, Dr. Hermann, told me "if there is nothing I can do that's it I'll close her up". Four hours later he came into my room with a smile on his face and I knew he had saved my baby's life. He then informed us that 3% of children with CF are born with MI. Three long weeks later the genetic screening results are back and Kylie has Cystic Fibrosis, gene mutation, double delta f5o8. The fight had just begun. Three surgeries later and three long months in the NICU we were finally able to come home. Cystic Fibrosis effects every organ in the body....she takes eight medications to help her stay healthy. At 18 months Kylie was admitted with a CF Exacerbation due to a virus that she just couldn't fight on her own. After eleven longs days and constant antibiotics through a Picc Line, Kylie was able to come home. She was now given additional medication to continue her battle against CF. To our surprise Medicaid rejected the medicines, left standing in tears not knowing how I was going to come up with money but knowing I had to one way or another, I'm asking for your help. Please buy a shirt or even just spread the word to your friends.





