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A friend of mine recently wrote this poem about his family …

Col’s daughter has Down Syndrome and this is a very honest and touching poem that he recently wrote over on the families blog – Perfect By Designx2

This is not the way I’d thought I’d start

To share this message from my heart

A question asked from my little buddy

That left Dad feeling somewhat cruddy!

The little voice asked as we left home

“Does anyone wish Eden didn’t have Down syndrome?”

Mum jumped straight in, with no way, no how

while my heart dropped low and my head took a bow

Now before you go “well that’s just not right!”

And before you try to pick a fight

I love Eden Rose more than anyone

And I hope you understand this when I’m done

My little girl had all of my heart

From the get go, right from the start

She had me wrapped ’round her little finger

That’s why the pain of this question will linger

There is nothing to change, not one little thing

She’s my angel, my dream, she makes my heart sing

She’s funny, loving, determined and sneaky

She’s strong, fierce and a whole heap of cheeky

Her love is bold, pure and true

Accepting of others, yes even you!

This world unfortunately won’t always see this

And she’ll bare the brunt of those who “take the piss”

The thought of this cuts deep for me

The Fathers heart wants to protect you see

I would give all I have and then some

To save her from other peoples dumb

Saving from all that hurts or scars

And to set her high among the stars

A love so deep, it wants to shield her pain

To keep her away from others stain

I don’t feel this way from a diagnosis

It’s this broken world that brings my prognosis

The fear of ‘different’ that eats away

It stops us from just saying G’day

There is nothing here that you can catch

But a beautiful relationship just might hatch

If you stop for a moment and truly see,

It’s not the “dis” but the ability

My angel was sent to me from above,

To show us what it means to love

So after all this, it’s not her, it’s us

WE need to change our prejudice.

Written by Col at Perfect By Designx2 – http://perfectbydesignx2.com

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