Did You Know

Clinical criteria for dementia with Lewy bodies (DLB) was first proposed in 1996. The criteria were revised in 1999 and 2005. This means that many neurologists in practice today never studied this disorder in medical school, if they graduated in 2005 and earlier.

In the US, a “rare” or “orphan” disease is one where there are fewer than 200,000 patients. PSP, MSA, and CBD are all rare diseases.

In this 2015 landmark MSA study of 134 patients clinically diagnosed with MSA, only 62% actually had MSA upon brain autopsy. BSN was responsible for almost 25% of the MSA brains for this study. Learn more.

The term “multiple system atrophy” was introduced in 1996. The term unified olivopontocerebellar atrophy (OPCA) and Shy-Drager Syndrome (SDS). OPCA cases were first described about 100 years ago. SDS was first described in 1960.