Quote : There are times when I feel that gastroparesis just not understood by the medical profession. There are times when I feel that gastroparesis just not understood by the medical profession.

Quote : There is ALWAYS hope. There is ALWAYS hope.

SoTired, I've been doing so research and came across this article. It might be worth reaching out to these docs at the University of Auckland. Caveat: I have no clue how much it will cost, whether it is possible, etc. but just wanted to give you some names for people who are doing research NZ on gastroparesis who might be able to help.The issue with going to other countries for treatment is that they have to go back to NZ and often times the doctors will not treat the people who sought treatment elsewhere. Even if they do "honor" what has been done in another country, as soon as that is undone by something they go back to their old treatment i.e. a person goes to Australia, gets a J tube and then comes back to NZ. After a flare of gastroparesis, the J tube travels up into the stomach, needs to be pulled and the doctors in NZ refuse to put in another J tube but instead just put in a NG and call it a day. Here is a story about someone who went through that and in the end is worse off than she was prior to going to Australia for treatment.It would be awesome if we could get SoTired and her daughter to Cleveland Clinic (my daughter went there for her GP) but it would really be expensive (what isn't in the US medical system??) and she would in the end have to go back to NZ. I know too that SoTired's daughter is treated badly in the hospitals because of her prior ED diagnosis. It is something I've run into with my own daughter where she has a reputation and people treat her according to where she was years ago rather than accurately assessing her condition now. We were very lucky in that the doc at Cleveland Clinic did not look at her prior records but said instead tell me your story. He listened to us before even looking at the records which was amazing so he accurately diagnosed her condition.I'm not trying to speak for SoTired but rather point out some of the obstacles faced in seeking treatment in other countries and then having to go back to NZ. I have no doubt that NZ is an awesome place that I will visit sometime but medical care at least for GP is in the dark ages.Yes!!!! God bless you Tali. You are so right. The GI system seems like a very simple system compared to other systems in the body until it doesn't work anymore. There are not a lot of options out there and when the drugs don't work well, you are stuck.This is true and when in a flare, all you can do is hold on and pray for return to baseline. My daughter's GP is nowhere near as bad as SoTired's daughter but she does have flares (waxes and wanes). During those flares, she has projectile vomiting, swollen abdomen, horrific nausea, extreme pain and nothing seems to help. I feel more helpless during those episodes than I ever did trying to get her through anorexia. She ends up hospitalized with NG tubes on suction to help decompress her abdomen, morphine, fluids, electrolytes. This is truly a horrible disorder and there is not a lot that can be done. Yes, new drugs are coming out but that all depends on whether your motility is such that you can absorb them.