No one mentions the Year 4 syllabus, state versus independent and what options we are considering for secondary. She doesn't have that future any more. Instead they talk about a home visit to assess the house and decide which room to put Rose in. HER ROOM I scream in my head. They talk about commodes, slides to get her in and out of wheelchairs, locked medical "toolboxes" that the community nurses will have codes to, the legal requirement that Rose be seen fortnightly by a doctor because we will have controlled drugs in the house, the fact that Rose's details will be on the 999 system at all times and on and on. Oh my lovely girl, I think to myself, I know you love the limelight but this time I really think you've overdone it.