View this email in your browser Rare Neurological Disease Special Report Features CMT and HNF!

Our community has a special opportunity to educate health care professionals about CMT! Just released, the third annual Rare Neurological Disease Special Report—a widely-read supplement mailed out with March’s Neurological Reviews magazine—has CMT taking a front-row position with several articles discussing the latest developments in CMT treatments and improving CMT care.



Featured articles about CMT and HNF’s related initiatives include: on-going PXT-3003 Phase III clinical trial for CMT1A (pg. 7) An update on the

findings from HNF’s “Inaugural Patient-Centered CMT Summit” are showcased to encourage improvements in research and care. ( A review of key patient-reportedare showcased to encourage improvements in research and care. ( pg. 8

"Bracing Versus Surgery for Patients with Charcot-Marie-Tooth Disease" (pg. 9) Orthopedic surgeon and HNF Summit speaker Glenn Pfeffer, MD assessing

clinical therapeutic potential of gene therapy for rare neurological diseases (pg. 31) , and, An overview of the currentfor rare neurological diseases, and,

HNF’s survey for health care professionals to assess pediatric CMT care and to work towards developing pediatric Standards of Care guidelines ( The launch ofand to work towards developing pediatric Standards of Care guidelines ( p g. 49 Be sure to access full magazine by download here to read these and many more informative articles about caring for and treating rare neurological diseases and disorders!