Hide Transcript Show Transcript

WEBVTT INCREDIBLE COST OF HIS CARE ANDTHEIR FIGHT TO KEEP THEM ATHOME.>> WE NOW NEED ANOTHER MEANS OFREVENUE TO KEEP HIM WITH US ONEMORE DAY.>> THE FAMILY OF PETE FRADY'S ISNOW REVEALING THAT HE ISSTRUGGLING TO KEEP UP WITH THERISING COST OF HIS AROUND THECLOCK HOME HEALTH CARE.QUITE SEASON THE ADVANCEDSTAGES.IT IS COSTING $3000 A DAY.>> THEY HAVE GONE TO GREATLENGTHS TO KEEP HIM COMFORTABLE.THEY PUT A 1500 SQUARE FOOTADDITION ON THE FAMILY HOME, -- >> IF WE PUT HIM IN A HOME,SOMETHING THAT WOULD BE PAID FORBY HIS INSURANCE, HE WOULD LASTA DAY.>> THE MILLIONS OF DOLLARS THATPETE INSPIRED DID NOT GO TO HIM.THE MONEY WENT TO ALS RESEARCHORGANIZATIONS WHO AREAGGRESSIVELY SEARCHING FOR ACLEARER.-- A CURE.THEY ARE NOW ASKING FOR HELP.DONATIONS CAN YOU MADE THROUGHTHE ALS ASSOCIATION WEBSITE.>> FOR HIM TO ENJOY HIS WIFE,HIS BABY DAUGHTER, IN ORDER TOMAYBE HELP THE GUY WHO HASINSPIRED $250 MILLION TO ALSRESEARCH ORGANIZATIONS, WHATCOST IS A LIFE?

Advertisement Pete Frates' family struggling to keep up with health care costs Share Shares Copy Link Copy

The family of Pete Frates, the man behind the Ice Bucket Challenge, is now revealing a personal challenge -- struggling to keep up with the rapidly rising cost of his around-the-clock home health care. "We now need another means of revenue to keep him with us one more day,” John Frates said. The Frates family has gone to great lengths to keep Pete Frates at home and keep him comfortable. Shortly after he was diagnosed, they put a 1,500 square-foot addition on the family home, enough space for Pete, his wife, daughter, and caregivers. "He's in the advanced stages. He's very sick. It's costing us $3,000 a day for specialized nursing,” John Frates said. "If we put him in a home, which is something that would be paid for by his insurance, he would last a day.” The millions of dollars from Ice Bucket Challenge that Pete inspired did not go to him. The money went to ALS research organizations, who are aggressively searching for a cure. Now, though, the Frates family is asking for financial help in caring for Pete. Click here to donate. "In order for him to enjoy his wife, his family, his baby daughter, in order to maybe help the guy who has inspired a $250 million windfall to ALS research organizations,” John Frates said. “What cost is a life? Is it $3,000 a day? I hope so."